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  1. Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, life-threatening terminal-complement-mediated disease resulting in intravascular hemolysis and thrombosis with significant morbidity and premature mortality...

    Authors: Carolyn E. Schwartz, Roland B. Stark, Katrina Borowiec and Karl-Johan Myren

    Citation: Health and Quality of Life Outcomes 2021 19:228

    Content type: Research

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  2. Quality of life outcomes have been used frequently in clinical trials of oral health interventions. This study assessed the effects of a randomized trial on oral health related quality of life comparing an ind...

    Authors: Susan Reisine, Jean J. Schensul, Apoorva Salvi, James Grady, Toan Ha and Jianghong Li

    Citation: Health and Quality of Life Outcomes 2021 19:227

    Content type: Research

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  3. To assess the psychometric properties of the Dutch-Flemish Patient-Reported Outcome Measurement Information System Scale v1.2 – Global Health (PROMIS-GH).

    Authors: Leonardo Pellicciari, Alessandro Chiarotto, Emanuele Giusti, Martine H. P. Crins, Leo D. Roorda and Caroline B. Terwee

    Citation: Health and Quality of Life Outcomes 2021 19:226

    Content type: Research

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  4. Cardiovascular diseases (CVDs) are among the most common causes of death worldwide, including in Iran. Considering the adverse effects of CVDs on physical and psychosocial health; this study aims to investigat...

    Authors: Sara Jalali-Farahani, Parisa Amiri, Hanieh Fakhredin, Kiana Torshizi, Leila Cheraghi, Davood Khalili and Fereidoun Azizi

    Citation: Health and Quality of Life Outcomes 2021 19:225

    Content type: Research

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  5. MSQOL-54 is a multidimensional, widely-used, health-related quality of life (HRQOL) instrument specific for multiple sclerosis (MS). Findings from the validation study suggested that the two MSQOL-54 composite...

    Authors: Andrea Giordano, Silvia Testa, Marta Bassi, Sabina Cilia, Antonio Bertolotto, Maria Esmeralda Quartuccio, Erika Pietrolongo, Monica Falautano, Monica Grobberio, Claudia Niccolai, Beatrice Allegri, Rosa Gemma Viterbo, Paolo Confalonieri, Ambra Mara Giovannetti, Eleonora Cocco, Maria Grazia Grasso…

    Citation: Health and Quality of Life Outcomes 2021 19:224

    Content type: Research

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  6. Health-related quality of life (HRQoL) is greatly affected by prostate cancer (PCa) and associated treatments. This study aimed to measure the impact of radiotherapy on HRQoL and to further validate the Spanis...

    Authors: Almudena Zapatero, Xavier Maldonado Pijoan, Antonio Gómez-Caamaño, José Pardo Masferrer, Víctor Macías Hernández, Asunción Hervás Morón, Julia Luisa Muñoz García, Amalia Palacios Eito, Paloma Anguita-Alonso, Cristina González-Junco and José López Torrecilla

    Citation: Health and Quality of Life Outcomes 2021 19:223

    Content type: Research

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  7. Quantitative health preference research has shown that different “perspectives”, defined here as who is imagined to be experiencing particular health states, impact stated preferences. This qualitative project...

    Authors: Philip A. Powell, Donna Rowen, Oliver Rivero-Arias, Aki Tsuchiya and John E. Brazier

    Citation: Health and Quality of Life Outcomes 2021 19:222

    Content type: Research

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  8. Self-reported health-related quality of life is an important population health outcome, often assessed using a single question about self-rated health (SRH). The Patient Reported Outcomes Measurement Informati...

    Authors: Janel Hanmer

    Citation: Health and Quality of Life Outcomes 2021 19:221

    Content type: Short report

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  9. More than 52,000 casualties have been documented in post-9/11 conflicts. Service members with extremity injuries (EIs) or traumatic brain injury (TBI) may be at particular risk for long-term deficits in mental...

    Authors: Cameron T. McCabe, Jessica R. Watrous, Susan L. Eskridge and Michael R. Galarneau

    Citation: Health and Quality of Life Outcomes 2021 19:220

    Content type: Research

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  10. No specific scale to measure Quality of Life in Alzheimer's Disease in Nursing Homes (QoL-AD NH) exists in French. We aimed to translate and culturally adapt the QoL-AD NH participant scale into a French versi...

    Authors: Christophe Cousi, Valérie Igier and Bruno Quintard

    Citation: Health and Quality of Life Outcomes 2021 19:219

    Content type: Research

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  11. Studies on the long-term outcomes of receiving adequate treatment for depression and anxiety disorders are scarce. The aims of this study were to assess the association between adequacy of care and remission o...

    Authors: Catherine Lamoureux-Lamarche, Djamal Berbiche and Helen-Maria Vasiliadis

    Citation: Health and Quality of Life Outcomes 2021 19:218

    Content type: Research

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  12. Health-related quality of life (HRQOL) is an important concept to consider both individuals' ability to manage their daily lives and health status across the lifespan. Despite this variable's importance, there...

    Authors: Eunji Kwon, Jeongok Park, Sue Kim and Kyung Hee Lee

    Citation: Health and Quality of Life Outcomes 2021 19:217

    Content type: Research

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  13. Previous studies have shown that health-related quality of life (HRQoL) is associated with the prognosis of cancer patients. The aim of this study was to investigate risk factors for poor HRQoL in patients wit...

    Authors: Catarina Tiselius, Andreas Rosenblad, Eva Strand and Kenneth Smedh

    Citation: Health and Quality of Life Outcomes 2021 19:216

    Content type: Research

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  14. The Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF) is a tool created to assess the needs of people living with heart failure and their informal caregivers to assist delivering care in a ...

    Authors: Valentina Gonzalez-Jaramillo, Jelena Guyer, Nora Luethi, Piotr Sobanski, Rut Zbinden, Eveline Rodriguez, Lukas Hunziker, Steffen Eychmüller and Maud Maessen

    Citation: Health and Quality of Life Outcomes 2021 19:214

    Content type: Research

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  15. Although physical activity (PA) and sedentary time in cancer survivors (CSs) were associated with health-related quality of life (HRQOL), it was not clear whether their associations were similar among CSs with...

    Authors: Rui Yan, Beibei Che, Binghui Lv, Peng Wu, Xinyuan Lu, Yaxuan Zhang, Jiwei Wang and Jinming Yu

    Citation: Health and Quality of Life Outcomes 2021 19:213

    Content type: Research

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  16. Apart from maximizing functional abilities and independence after stroke, improving overall health-related quality of life (HRQoL) should also become part of the stroke treatment and rehabilitation process goa...

    Authors: Hui Jie Wong, Pei Lin Lua, Sakinah Harith and Khairul Azmi Ibrahim

    Citation: Health and Quality of Life Outcomes 2021 19:210

    Content type: Research

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  17. With trends towards longer life expectancy, lifetime with disability has also been prolonged. It is increasingly recognized that not only the person with disability but also those around them are affected. The...

    Authors: Wanyue Dong, Anthony B. Zwi, Chi Shen, Yue Wu and Jianmin Gao

    Citation: Health and Quality of Life Outcomes 2021 19:209

    Content type: Research

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  18. General population normative data for the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 questionnaire facilitates interpretation of data assessed from cancer patients. This study a...

    Authors: Juan Ignacio Arraras, Sandra Nolte, Gregor Liegl, Matthias Rose, Ana Manterola, Jose Juan Illarramendi, Uxue Zarandona, Mikel Rico, Lucia Teiejria, Gemma Asin, Irene Hernandez, Marta Barrado, Ruth Vera, Fabio Efficace and Johannes M. Giesinger

    Citation: Health and Quality of Life Outcomes 2021 19:208

    Content type: Research

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  19. The effect of COVID-19 on Health-Care Professionals’ mental health has received increased attention in the last year’s literature. However, previous studies essentially evaluated psychopathological symptoms an...

    Authors: Miriam Bajo, Pilar Gallego, Maria Stavraki, Grigorios Lamprinakos, Pablo Luna and Darío Díaz

    Citation: Health and Quality of Life Outcomes 2021 19:207

    Content type: Research

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  20. Patient-reported outcome (PRO) instruments measure health gains, including changes in health-related quality of life (HRQoL). Previous studies have assessed the reliability and relationship of multiple HRQoL i...

    Authors: Laura Lappalainen, Harriet Stenvall, Piia Lavikainen, Heikki Miettinen, Janne Martikainen, Harri Sintonen, Anna-Maija Tolppanen, Risto P. Roine and Juha Hartikainen

    Citation: Health and Quality of Life Outcomes 2021 19:206

    Content type: Research

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  21. Although there is emerging data regarding the psychometric properties of the Child Health Utility-9D instrument, more evidence is required with respect to its validity for use in different country settings. Th...

    Authors: Mandana Zanganeh, Peymane Adab, Bai Li and Emma Frew

    Citation: Health and Quality of Life Outcomes 2021 19:205

    Content type: Research

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  22. We aimed to investigate the determinants of Health-related quality of life (HRQOL) in Iranian patients with celiac disease (CD) using the structural equation modeling (SEM).

    Authors: Zeinab Nikniaz, Mohammad Asghari Jafarabadi, Mahdieh Abbasalizad Farhangi, Masood Shirmohammadi and Leila Nikniaz

    Citation: Health and Quality of Life Outcomes 2021 19:204

    Content type: Research

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  23. Pulmonary arterial hypertension (PAH) is characterized by progressive limitations on physical activity, right heart failure, and premature death. The World Health Organization functional classification (WHO-FC...

    Authors: Kristin B. Highland, Rebecca Crawford, Peter Classi, Ross Morrison, Lynda Doward, Andrew C. Nelsen, Howard Castillo, Stephen C. Mathai and Hilary M. DuBrock

    Citation: Health and Quality of Life Outcomes 2021 19:202

    Content type: Research

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  24. There is limited evidence regarding oral health related quality of life of HIV positive populations in sub-Saharan Africa. Focusing HIV positive- and HIV negative Ugandan mothers, this study assessed the influ...

    Authors: Nancy Birungi, Lars Thore Fadnes, Ingunn Marie Stadskleiv Engebretsen, James Kashugyera Tumwine and Anne Nordrehaug Åstrøm

    Citation: Health and Quality of Life Outcomes 2021 19:201

    Content type: Research

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  25. Valid measures of the well-being of older people are important for the evaluation of health and social care services. The nine-item Well-being of Older People measure (WOOP) was based on a novel framework deri...

    Authors: Mariska Q. N. Hackert, Job van Exel and Werner B. F. Brouwer

    Citation: Health and Quality of Life Outcomes 2021 19:200

    Content type: Research

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  26. Health-related quality of life (HRQL) in the general population of Kazakhstan has never been characterized. We constructed this population-based study of the largest city in Kazakhstan, Almaty with the aim to ...

    Authors: Denis Vinnikov, Aizhan Raushanova, Zhanna Romanova and Zhangir Tulekov

    Citation: Health and Quality of Life Outcomes 2021 19:199

    Content type: Research

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  27. The COVID-19 pandemic has caused significant disruptions in the implementation of programs across educational institutions. Nursing students, being both young adults and by practical training, part of the heal...

    Authors: E. G. Beisland, K. H. Gjeilo, J. R. Andersen, O. Bratås, B. Bø, K. Haraldstad, I. H. H. Hjelmeland, M. M. Iversen, B. Løyland, T. M. Norekvål, K. Riiser, G. Rohde, K. H. Urstad, I. Utne and T. N. Flølo

    Citation: Health and Quality of Life Outcomes 2021 19:198

    Content type: Research

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  28. The study aimed to evaluate the long-term change of health-related quality of life (HRQOL) and to identify predictors of HRQOL 5 years after cardiac surgery.

    Authors: Daiva Grazulyte, Ieva Norkiene, Evaldas Kazlauskas, Inga Truskauskaite-Kuneviciene, Smilte Kolevinskaite, Donata Ringaitiene and Jurate Sipylaite

    Citation: Health and Quality of Life Outcomes 2021 19:197

    Content type: Research

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  29. Myocardial infarction and unstable angina are prevalent in Korea. The MacNew Heart Disease health-related quality of life questionnaire is a widely used patient-reported outcome measure for patients with heart...

    Authors: Sun Hyoung Bae, Myeong-Ho Yoon and Jin-Hee Park

    Citation: Health and Quality of Life Outcomes 2021 19:196

    Content type: Research

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  30. Although several studies have reported an association between tuberculosis and health-related quality of life, the change in health-related quality of life after pulmonary tuberculosis has been rarely studied....

    Authors: Sang Hyuk Kim, Hyun Lee and Youlim Kim

    Citation: Health and Quality of Life Outcomes 2021 19:195

    Content type: Research

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  31. A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand ...

    Authors: R. Shah, F. M. Ali, A. Y. Finlay and M. S. Salek

    Citation: Health and Quality of Life Outcomes 2021 19:194

    Content type: Review

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    The Correction to this article has been published in Health and Quality of Life Outcomes 2021 19:211

  32. This study was conducted in a general population of schoolchildren in Sweden, with the aim to assess the psychometric properties of a generic preference-based health related quality of life (HRQoL) instrument,...

    Authors: Kristina Lindvall, Masoud Vaezghasemi, Inna Feldman, Anneli Ivarsson, Katherine J. Stevens and Solveig Petersen

    Citation: Health and Quality of Life Outcomes 2021 19:193

    Content type: Research

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  33. The aim of this cross-sectional study was to evaluate the effect of family functioning on oral health related quality of life (OHRQoL) and dental caries status among 4- to 6-year-old Chinese pre-school childre...

    Authors: Sobia Bilal, Anshad Mohamed Abdulla, Niekla Survia Andiesta, Muneer Gohar Babar and Allan Pau

    Citation: Health and Quality of Life Outcomes 2021 19:192

    Content type: Research

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  34. The Musculoskeletal Health Questionnaire (MSK-HQ) is a recently developed generic questionnaire that consists of 14 items assessing health status in people with musculoskeletal disorders. The objective was to ...

    Authors: Alexander Tingulstad, Maurits W. Van Tulder, Tarjei Rysstad, Anne Therese Tveter, Jonathan C. Hill and Margreth Grotle

    Citation: Health and Quality of Life Outcomes 2021 19:191

    Content type: Research

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  35. The short form of the Stroke Impact Scale (SF-SIS) consists of eight questions and provides an overall index of health-related quality of life after stroke. The goal of the study was the evaluation of construc...

    Authors: Anna Coppers, Jens Carsten Möller and Detlef Marks

    Citation: Health and Quality of Life Outcomes 2021 19:190

    Content type: Research

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  36. The Diabetes Health Profile (DHP‐18), structured in three dimensions (psychological distress (PD), barriers to activity (BA) and disinhibited eating (DE)), assesses the psychological and behavioural burden of ...

    Authors: Ikram Benazizi, Mari Carmen Bernal-Soriano, Yolanda Pardo, Aida Ribera, Andrés Peralta-Chiriboga, Montserrat Ferrer, Alfonso Alonso-Jaquete, Jordi Alonso, Blanca Lumbreras and Lucy Anne Parker

    Citation: Health and Quality of Life Outcomes 2021 19:189

    Content type: Research

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  37. As a result of high transmission and mortality rates, the Covid-19 pandemic has led to a worldwide health crisis, isolation, and widespread fear, therefore negatively influencing people’s quality of life (QOL)...

    Authors: Ali Hasanpour Dehkordi, Marzieh Aslani, Abbas Ebadi, Selman Repišti, Borhan Moradveisi and Reza Ghanei Gheshlagh

    Citation: Health and Quality of Life Outcomes 2021 19:188

    Content type: Research

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  38. Advances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in ch...

    Authors: Pascal Amedro, Oscar Werner, Hamouda Abassi, Aymeric Boisson, Luc Souilla, Sophie Guillaumont, Johanna Calderon, Anne Requirand, Marie Vincenti, Victor Pommier, Stefan Matecki, Gregoire De La Villeon, Kathleen Lavastre, Alain Lacampagne, Marie-Christine Picot, Constance Beyler…

    Citation: Health and Quality of Life Outcomes 2021 19:187

    Content type: Study protocol

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  39. Kangaroo mother care is known to help save the lives of preterm and low birthweight infants, particularly in resource-limited health settings, yet barriers to implementation have been documented. Mothers and t...

    Authors: Alinane Linda Nyondo-Mipando, Mai-Lei Woo Kinshella, Tamanda Hiwa, Sangwani Salimu, Mwai Banda, Marianne Vidler, Elizabeth Molyneux, Queen Dube, David M. Goldfarb and Kondwani Kawaza

    Citation: Health and Quality of Life Outcomes 2021 19:186

    Content type: Research

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  40. The objective of this study was to verify the reliability, discriminatory power and construct validity of the Kidscreen-27 questionnaire in Brazilian adolescents.

    Authors: Pablo Magno da Silveira, Alexsandra da Silva Bandeira, Marcus Vinicius Veber Lopes, Adriano Ferreti Borgatto and Kelly Samara da Silva

    Citation: Health and Quality of Life Outcomes 2021 19:185

    Content type: Research

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  41. In clinical trials for rare diseases, such as Duchenne muscular dystrophy, clinical outcome assessments (COA) used to assess treatment benefit are often generic and may not be sensitive enough to detect change...

    Authors: Hannah Staunton, Claire Trennery, Rob Arbuckle, Maitea Guridi, Elena Zhuravleva, Pat Furlong, Ryan Fischer and Rebecca Hall

    Citation: Health and Quality of Life Outcomes 2021 19:184

    Content type: Research

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  42. High prevalence rates in diabetes-related distress have been observed in several studies; however, in the region of Sub-Saharan Africa evidence is lacking as is, for example, the case for Rwanda, where diabete...

    Authors: Charilaos Lygidakis, Jean Paul Uwizihiwe, Michela Bia, Per Kallestrup, Damas Dukundane, Brenda Asiimwe-Kateera, Simon Pierre Niyonsenga and Claus Vögele

    Citation: Health and Quality of Life Outcomes 2021 19:183

    Content type: Research

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  43. Pregnant women experience physical, physiological, and mental changes. Health-related quality of life (HRQoL) is a relevant indicator of psychological and physical behaviours, changing over the course of pregn...

    Authors: Huailiang Wu, Weiwei Sun, Hanqing Chen, Yanxin Wu, Wenjing Ding, Shangqiang Liang, Xinyu Huang, Haitian Chen, Qing Zeng, Zhuyu Li, Peng Xiong, Jian Huang, Babatunde Akinwunmi, Casper J. P. Zhang and Wai-Kit Ming

    Citation: Health and Quality of Life Outcomes 2021 19:182

    Content type: Research

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  44. The study aimed to appraise the health-related quality of life (HRQoL) measured by the five-level EuroQol-5 dimensions (EQ-5D-5L) in amyotrophic lateral sclerosis (ALS), and to explore the associations between...

    Authors: Qian-Qian Wei, Yanbing Hou, Yongping Chen, Ruwei Ou, Bei Cao, Lingyu Zhang, Tianmi Yang and Huifang Shang

    Citation: Health and Quality of Life Outcomes 2021 19:181

    Content type: Research

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  45. The Suboptimal Health Status Questionnaire-25 (SHS-Q-25) developed to measure Suboptimal Health Status has been used worldwide, but its construct validity has only been tested in the Chinese population. Applyi...

    Authors: Eric Adua, Ebenezer Afrifa-Yamoah, Kwasi Frimpong, Esther Adama, Shantha P. Karthigesu, Enoch Odame Anto, Emmanuel Aboagye, Yuxiang Yan, Youxin Wang, Xuerui Tan and Wei Wang

    Citation: Health and Quality of Life Outcomes 2021 19:180

    Content type: Research

    Published on:

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