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Table 2 Demographics of the caregiver sample

From: Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy

Demographic

CE sample

CD sample

Total no. of caregivers (n = 7)

Total no. of caregivers (n = 8)

Gender, n (%)

 Male

1 (14.3%)

1 (12.5%)

 Female

6 (85.7%)

7 (87.5%)

Age of individual with Duchenne cared for n, (%)

 6–7 years

2 (28.6%)

3 (37.5%)

 8–9 years

2 (28.6%)

3 (37.5%)

 10 years

3 (42.8%)

2 (25.0%)

Caregiver race, n (%)

 White

6 (85.7%)

6 (75.0%)

 Asian

0

1 (12.5%)

 Hindu*

1 (14.3%)

1 (12.5%)

Relationship with individual cared for, n (%)

 Parent/guardian

7 (100.0%)

8 (100.0%)

Work status, n (%)

 Working full time

6 (85.7%)

5 (62.5%)

 Working part time

1 (14.3%)

1 (12.5%)

 Full-time homemaker

0

1 (12.5%)

 Occasional consultancy work

0

1 (12.5%)

Level of education

 High school diploma

1 (14.3%)

1 (12.5%)

 Some years of college

2 (28.6%)

3 (37.5%)

 Cert program

1 (14.3%)

0 (0%)

 College or university

2 (28.6%)

1 (12.5%)

 Graduate or professional degree

1 (14.3%)

3 (37.5%)

  1. *Self-reported race as Hindu
  2. CD, cognitive debriefing; CE, concept elicitation