Table 1 Patient reported outcomes referred to, constructs measured and populations for which they are validated
From: Quality of life in age-related macular degeneration: a review of the literature
Measure | Country of origin | Actually measures | Validated for MD or closest population | |||||
|---|---|---|---|---|---|---|---|---|
| Â | Â | HS | LS | FS | VF | WB | QoL | Â |
Hospital Anxiety and Depression Scale (HADS) [13] | Denmark |  |  |  |  | √ |  | elderly |
SF-36 [14] | USA | √ |  |  |  | √* |  | elderly |
W-BQ12 [15] | UK |  |  |  |  | √* |  | MD |
HUI-3 [25] | Canada | √ |  |  |  | √ |  | community |
EQ5D (EuroQol) [27] | Europe | √ |  |  |  | √ |  | community |
Instrumental Activities of Daily Living scale (IADL) [30] | USA |  |  | √ |  |  |  | MD |
Sickness Impact Profile (SIP) [31] | UK |  |  | √ |  | √ |  | Elderly |
Sickness Impact Profile for vision (SIPv) [32] | UK |  |  |  | √ | √ |  | Retinal disease |
Activities of Daily Vision Scale (ADVS) [33] | USA |  |  |  | √ |  |  | MD |
14-item Vision Function Questionnaire (VF-14) [34] | USA |  |  |  | √ |  |  | MD |
Daily Living Tasks Dependent on Vision (DLTV) [36] | UK |  |  |  | √ |  |  | MD, cataract |
Low vision QoL (LVQOL) [37] | UK |  |  |  | √ | √ |  | mixed sample including MD |
National Eye Institute Vision Function Questionnaire (NEI-VFQ25, 39, 51) [38] | USA |  |  |  | √ | √ |  | MD |
Measure of the Impact of MD on QoL (MacDQoL) [42, 44] | UK |  |  |  |  |  | √ | MD |
Profile of Mood States (POMS) [65] | USA |  |  |  |  | √* |  | elderly |
Quality of Well-being Scale (QWB) [66] | USA |  |  | √ |  |  |  | elderly |
Diagnostic and statistical manual (DSMIV) [69] | USA |  |  |  |  | √ |  | adults |
Functional Vision Screening Questionnaire (FVSQ) [71] | USA |  |  |  | √ |  |  | Vision impaired |
Community Disability Scale (CDS) [72] | USA |  |  | √ |  |  |  | adults |
Life Satisfaction Index – Wellbeing [87] | UK |  | √ |  |  |  |  | elderly |
General Health Questionnaire [110] | UK |  |  |  |  | √* |  | elderly |
Positive and Negative Affect Scale [131] | USA |  |  |  |  | √* |  | adults |
Vision-related QoL (VQOL) [117] | UK |  |  |  | √ | √ |  | Vision impaired |
Manchester Low Vision Questionnaire (MLVQ) [118] | UK |  |  |  | √ |  |  | MD |
Geriatric Depression Scale [115] | UK |  |  |  |  | √ |  | elderly |
Psychological General Well-being Index (PGWB) [123] | USA |  |  |  |  | √* |  | adults |
Multilevel Assessment Instrument (MAI) [132] | USA |  |  | √ |  |  |  | elderly |
Freiburg Inventory on Coping with Illness [133] | Germany | coping | Â | Â | Â | Â | Â | adults |