Table 3 Reported sample characteristics for each measure.

Measure

Inclusion/exclusion

Setting

Response rate (%)

Sample

size (n)

Age

(yrs)

Gender (%)

Cancer type

(%)

Cancer treatment stage (%)

AQoL [35]

Reported

Hematology

/oncology clinic

95

75

9-20

mean 12.4

M (55)

F (45)

Leukaemia (50)

Bone/joint (17)

Lymphomas (9)

Neurological (9)

Hodgkin's (5)

Other (9)

In treatment (55)

Pre or post treatment (45)

MMQL Adolescent Forrm [52]

-

Nine hospitals

-

268

13-20.9

median 16.6

M (56)

F (44)

Leukaemia ALL (37)

Leukaemia AML (8)

Hodgkin's (11)

Non-Hodgkin's (11)

Brain (6)

Other (27)

On therapy (41)

Off therapy > 1 year (59)

PedsQL 3.0 Cancer Module (C&A) [55]

Reported

Hematology/oncology center and Center for Cancer and Blood Diseases

-

220

5-18

mean 10.9

M (56)

F (44)

Leukaemia (50)

Brain (7)

Non-Hodgkin's (6)

Hodgkin's (3)

Wilm's Tumor (6)

Other (28)

On treatment (54)

Off treatment < 1 year (18)

Off treatment > 1 year (28)

QOL-CS [16]

Reported

University medical center

53

176

16-28

mean 21.8

M (43)

F (57)

Leukaemia (30)

Brain/CNS (11)

Lymphoma (21)

Wilm's Tumor (10)

Sarcomas (16)

Other (11)

3-27 yrs post-diagnosis (100)

(average 13.3 yrs)

PCQL-32 [59]

Reported

Three pediatric cancer centers

89.5

291

8-18

mean 11.78

M (61)

F (39)

Leukaemia ALL (44)

Leukaemia AML (6)

Leukaemia other (1)

Hodgkin's (6)

Non-Hodgkin's (9)

Other (34)

Newly on-treatment (37)

Relapsed on treatment (8)

Remission off-treatment (11)

Long-term off-treatment (44)

PCQL Modular Approach [62]

Reported

Three pediatric cancer centers

89.5

291

8-18

mean 11.78

-

-

On treatment (45)

Off treatment (55)

PIE [63]

Reported

Children's cancer unit

-

41

8-24

mean

14.6

M (49)

F (51)

Leukaemia ALL (68)

Wilm's Tumor (15)

Sarcomas (12)

Non-Hodgkin's (5)

Maintenance treatment (41)

Follow-up only (59)