Items grouped by dimensions | Controlled patients (N = 330) | Uncontrolled patients (N = 171) |
---|---|---|
General treatment satisfactiona | ||
I am dissatisfied with the amount of time I invest in controlling my clotting | 5.1 (1.4) | 3.5 (1.7) |
I am dissatisfied with the time it takes to get results | 5.0 (1.4) | 3.4 (1.6) |
I dislike having to plan my activities in advance | 4.8 (1.3) | 3.6 (1.6) |
I am worried by the uncertainty I feel while awaiting results | 4.8 (1.6) | 3.6 (1.7) |
I am fed up with the amount of time I lose at the doctor’s surgery | 4.5 (1.5) | 3.3 (1.7) |
I am annoyed that many people do not understand the problems related to my treatment | 4.9 (1.4) | 4.1 (1.6) |
Self-efficacy | ||
I believe I have learned to control my treatment | 4.3 (1.4) | 3.6 (1.5) |
I can deal with the treatment-related problems that arise | 4.2 (1.3) | 3.5 (1.3) |
I am well informed about what to do to achieve results within the acceptable limits | 4.4 (1.3) | 4.0 (1.2) |
I am sure I am able to control my treatment | 4.3 (1.5) | 3.4 (1.4) |
Distress | ||
My treatment makes me feel worried or stressed | 2.2 (1.4) | 3.5 (1.7) |
My treatment is a cause of concern for my family | 3.0 (1.6) | 4.2 (1.5) |
I am worried about my future health | 4.4 (1.5) | 4.7 (1.3) |
I am worried that my treatment may shorten my life | 2.9 (1.7) | 3.8 (1.8) |
I feel dependent on my anticoagulation medication | 3.2 (1.7) | 4.2 (1.5) |
I tend to worry about things | 4.2 (1.4) | 4.4 (1.3) |
Despite regular visits to the doctor I feel limited | 2.9 (1.5) | 3.6 (1.5) |
When I go to the dentist or other doctors, I am concerned that they might not know enough about anticoagulation | 3.2 (1.5) | 3.8 (1.6) |
I dislike being treated like an invalid | 2.5 (1.6) | 2.9 (1.6) |
I am worried about the side effects of my anticoagulant treatment | 2.9 (1.5) | 3.9 (1.6) |
Daily hassles | ||
The effort of controlling my blood clotting causes me discomfort when I leave the house | 1.8 (1.2) | 3.6 (1.7) |
I avoid some activities (e.g. cycling) due to the risk of accidents | 2.5 (1.6) | 3.3 (1.6) |
My treatment prevents me from organizing my leisure time as I wish | 1.7 (1.2) | 3.2 (1.7) |
The risk of cutting myself prevents me from doing housework | 2.5 (1.5) | 3.5 (1.5) |
I am afraid of doing exercise out of fear to hurt myself | 2.7 (1.6) | 3.6 (1.6) |
I would do more sports if I did not take anticoagulants | 2.1 (1.3) | 2.3 (1.3) |
I have problems at work because of frequent absences caused by my treatment | 1.2 (0.7) | 1.5 (1.1) |
Strained social network | ||
I see my friends less often since following this treatment | 1.8 (1.2) | 2.5 (1.6) |
I avoid going on holiday because I do not know the negative effects different foods may have on treatment | 1.9 (1.3) | 2.8 (1.6) |
I avoid travelling because I fear that I may not receive suitable treatment in case my results are too low or high | 2.1 (1.4) | 3.2 (1.6) |
The treatment has affected my sex life | 1.5 (1.0) | 1.9 (1.3) |
I am worried about other people´s reactions to my treatment | 1.8 (1.2) | 2.5 (1.4) |