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Table 3 Demographics of the individuals with Duchenne

From: Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy

Demographic

CE sample

Total no. of individuals interviewed (n = 7*)

Age of individual with Duchenne (%)

 6–7 years

2 (28.6%)

 8–9 years

2 (28.6%)

 10 years

3 (42.8%)

Age diagnosed with Duchenne, n (%)

 Under 5 years old

4 (57.1%)

 Between 6 and 10 years old

3 (42.9%)

Age experienced symptoms of Duchenne, n (%)

 0–5 years old

5 (71.4%)

 6–10 years old

2 (28.6%)

Can the individual with Duchenne walk? n (%)

 Yes

7 (100.0%)

 No

0

  1. *Three individuals with Duchenne participated in the CE interviews and four caregivers were interviewed on behalf of the individual with Duchenne
  2. CE, concept elicitation